Comfortably Insane
The Price of Being Human

 

Sarcoidosis

(pronounced SAR-COY-DOE-SIS)   Click to hear the word

This is a sarcoidosis case study for anyone doing research on sarcoidosis. I have provided my entire sarcoidosis story for scrutiny by those of you who are curious. Also included are labs and Dr.'s notes for those interested in that sort of thing. If you desire to contact me for more information, you can find me at http://www.inspire.com/seaokie and leave me a message.


HOW I WAS DIAGNOSED
The time I had cancer for 4 weeks and 3 days. Click here to read my story.

WHAT IS SARCOIDOSIS?
A systemic inflammatory disease. Not an auto-immune disease. More enchanting information click here.

MY TYPES of SARCOIDOSIS:
Currently, my sarcoidosis is stage I and chronic. For all my medical labs and notes click here.
Thoracic

Lymphadenopathy (lymph nodes)
Mediastinal [view x-ray: 2002 | 2010]
Bilateral hilar - larger on the right. (3.0 cm x 2.2 cm). Peri-hilar fullness [view CT]
Enlarged pretracheal (2.8 cm x 2.0 cm) [view CT]
Right lower paratracheal (with calcification)
Confluent left para-aortic (7.0 cm x 2.0 cm ) [viewCT]
Retro-peritoneal - several, mildly enlarged
Subcarinal
Axilla
(all above CTs are 2001 - newer CTs available here)

Pulmonary (lungs)
Asthma secondary to sarcoid.
The lung parencyma appears normal. There is no pulmonary nodule. There is no pleural effusion. (2001) There is no infiltrate nor parenchymal lung abnormality identified. (2007)
This means my lung sarc is Stage 1.

Other Organ Involvement

Spleen
Several enlarged lymph nodes in the hilum of my speen. The spleen [was] normal in size but has numerous small low-attenuation regions best seen on the narrow windows. [view CTs] (2001)
The spleen is enlarged measuring 17.3 cm in length. There are multiple splenic, gastric, and esophageal varicosities present. [2nd radiologist said they were not varicosities, but were lymph nodes] (2009)

Liver
Granulomatous inflammation; Steatosis, focal (2009). Some incipient bridging fibrosis, but no extensive scarring.

Ocular (eyes)
Iridocyclitis. A form of uveitis with 2 kinds of inflammation: iritis (inflammation of iris) plus cyclitis (inflammation of ciliary body). [view diagram] Lasted a couple of days. No recurrence. (2006)
Eye exam in 20010 shows no sarcoid.

Cutaneous (skin)
Cutaneous, on upper arms and nose, presenting as large violacious (purpleish) plaques and hard nodules underneath the skin. [see skin]

Hematalogic

Leukopenia, neutropenia
White blood count is quite low, ranging between 1.2 and 2.0 since Nov 2008. [reference range is 4.3 - 11.0.]. Neutrophils consistently low.

Bone Marrow
Normocellular marrow with adequate numbers of megakaryocytes.
Unremarkable with normal maturation and relatively normal cell ratios.
The results showed no evidence of granulomatous disease.

Splenomegaly
CT shows slightly enlarged spleen at 17 cm.


HOW CAN I HELP?

There is NO CURE for sarcoidosis, and the cause is unknown. Researchers must have funding to find answers.

"It's kind of like other major diseases, but without the recognition, attention, sympathy, funding treatment, or cure." (© theGardener)

You can do it! Try donating to something other than breast cancer, MS, AIDS, and heart disease.
You'll feel just as great for helping with this one! (and you'll be helping me as well)

Foundation for Sarcoidosis Research       Together we're better - Stop Sarcoidosis Support Community        Snarky Sarkie: Sarcoidosis Awareness Shop